God-powered fight against PKAN
By ALLAN TINKER
The Kulsrud boys and their parents, grandparents and friends have been following the positive battle the family has made against the neurological condition
that has challenged the family. Laura Kulsrud offered their story for us this week. A new trial was started and the boys are enrolled. They were sent off in style at a December gathering in McClusky, where everyone visited and got up-to-date news firsthand from Laura.
She told of their battle that night in the following story.
“I have been writing in my letter for eight years with updates on the boys and PKAN and praying for that miracle, often using the word SOON. Well, I can FINALLY say SOON is here! The trial for CoA-Z has begun the enrollment for the trial and we are officially enrolled and finishing up the last steps to beginning the trial right after the first of the year!
“I cannot even explain the feeling of excitement our family has right now other than extreme gratefulness for so many people that have followed our story and joined it, prayers that have never stopped being sent and our kids for continuing to have a never give up attitude!
